Happy Saturday
and
Welcome to this year's Blog Hop for...
Rett Syndrome Awareness
In this hop we will be showing you many Disney themed projects while sharing with you about
Rett Syndrome.
If you have just stopped by my blog to visit with me, thank you and welcome, but please start at the beginning of the hop with our
Hostess, Robin from
Create-A-Latte.
We would not want you to miss any of these wonderful projects.
So, grab yourself a Latte', sit back and hop along with us as we share our projects with you.
October is Rett Syndrome Awareness Month, so I wanted to help get the word out and what better way to do that than with a blog hop.
Rett Syndrome strikes without warning. A girl with Rett Syndrome usually starts out as a happy and healthy baby. Then something goes terribly wrong. She loses the ability to speak, she can't use her hands to play with toys, or to even feed herself, and she may lose the ability to walk.
Despite their physical disabilities, girls with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought.
Rett Syndrome is caused by a mutation of the MECP2 gene on the X chromosome.
Rett Syndrome is found in all racial and ethnic groups throughout the world, and in every socioeconomic class.
Rett Syndrome affects 1 in 15,000 female births.
*Symptoms of Rett Syndrome...
Rett Syndrome is a genetic neurological disorder that affects girls between 6 and 18 months of age. This regressive disease leads to lifelong handicaps, including loss of speech and voluntary muscle control, and is often misdiagnosed as Cerebral Palsy or Autism. Symptoms range from mild to severe, and almost always include...
*Developmental Regression or Plateau
*Near constant hand clasping or wringing
*Severe communication impairment
*Breathing problems
*Digestive issues
*Floppy arms and legs
*If able to walk, then with a shaky, unsteady gait, or toe-walking. But most do end up using a wheelchair for the most part.
*Scoliosis
*Seizures
*Slowing head growth
*Abnormal sleep patterns
*Transient loss of social engagement
*Poor circulation that can lead to cold and bluish arms and legs
*Anxiety
Many individuals with Rett Syndrome live well into adulthood, although there are some that do not get that chance and end up losing their battle to Rett Syndrome at a very early age.
Most people including Doctors are not aware of Rett Syndrome, so, please help me get the word out about Rett Syndrome and hopefully the more that know the faster we can help in finding a cure.
For more information you can visit...
http://www.rettsyndrome.org/
Now, are you ready for some blog candy??? We have a several wonderful and generous sponsors today...
1. Lucy Kelleher
with Close to My Heart
$10 gift certificate for Close to My Heart products with Lucy
Close To My
Heart
2. Dee's Delights Store
$20 Gift Certificate for Dee's Store
3. Heather Stafford with...
Gemini Red Creations
A floating locket and your choice of two floating charms
http://www.geminiredcreations.com/shop/floating-lockets/
4. Diana Larson with
DLART
$10 Gift Certificate for DLART Store
https://www.etsy.com/shop/DLART
5. Robin Lane with
Create-A-Latte
A Collection of Snap Products by Simple Stories. Everything you need to put together your Disney memories.
The kit comes with an Album, a pack of Insta Pocket Pages, "Say Cheese" Journal Kit, and the "Say Cheese" Snap Pack.
Without further ado...Our Disney Projects.
I felt honored to be asked to join this hop and spread awareness about Rett Syndrome!
We are headed to Walt Disney World in a couple of weeks. This is not our first trip, but it is the first time we will go close to Christmas time! Every time we go, I pre-make an 8 x 8 scrapbook album for autographs and pictures for my youngest son. His older brothers are 19 and 24 and no longer want an album!! Because Tanner is 9, he wants less autographs and more photos in his album. We are eating some character dining breakfasts and dinners, so I made sure to include those pages. I also leave some generic pages just in case he wants an autograph or two.
I started with the above images that I found on Pinterest. With the help of some friends, I traced and cut the images on my Cameo.
I made two 2-page spreads that will hold a 2x3 picture that I can print off with my Zink hAppy printer using photos from my cell phone.
I matted the photo areas with black cardstock. I added washi tape on the green pages.
I know he will LOVE the 7 Dwarf Mines ride, so I cut this roller coaster set from the Silhouette Store using my Cameo and added these stickers.
We are spending part of a day in Downtown Disney and will go bowling at Splitsville. I used this bowling border from the Silhouette store.
We are also planning a hot air balloon ride. I cut the clouds and hot air balloon from cuts found in the Silhouette Store. I used a font from my computer called Walt Disney Script (found on dafont.com) for my words.
This simple page was cut with my cricut. I used Mickey Font for the words and added stickers. I made three sets of pages like this for all the characters we will see at breakfast.
These next pages were designed in Silhouette Studio and printed out. My mother-in-law just loves the Haunted Mansion!! I could not resist!! I found the three ghosts on Pinterest.
These images were also found on Pinterest and printed out on red cardstock.
Another favorite image from Pinterest printed out. I made a second page just like this one!
I printed Mickey and Minnie on these pages and cut out the words on my Cricut. These images were also on Pinterest.
I printed Donald and the words. Donald was found on Pinterest and the font was from my computer.
I printed the pink castle (from the Silhouette Store) and layered the words on top. I printed out 6 of these. They won't reveal which princesses will be at the restaurant yet, so I have stickers to add later.
The Sci-Fi Dine-In Theater is a fun one. You sit in a car at the drive in and eat! I used images from the Silhouette Store and a font on my computer to create and print these pages.
My favorite part of Disney is feeling like I am 4 years old EVERY time I go there!!! I hope your Disney Dreams come true!!
Be sure to head on over to....
An Geon
for your next stop and see her wonderful project that she has made to share with you today.
If you get lost along the way here is the entire line up for today's Blog Hop.
1. Robin L. ~ http://create-a-latte.blogspot.com/
Thank you for hopping along with us today, I hope that you have learned something about Rett Syndrome and that you will help spread the word so that we can make as many people aware of this as possible. I also hope that we have inspired you to get your craft on.
